JENNY WILLOTT MP PRODUCES HOT AIR TO RAISE CYSTIC FIBROSIS AWARENESS

June 15, 2012 2:38 PM

jw lung testJenny Willott, the Liberal Democrat MP for Cardiff Central, has had her lung function tested to help raise awards of the devastating impact of Cystic Fibrosis.

Jenny achieved 89% on the spirometry test, which came as part of an event organised by the Cystic Fibrosis Trust to show parliamentarians firsthand how Cystic Fibrosis damages the lungs. The average lung capacity for an adult with Cystic Fibrosis is just 65.1% compared to people without Cystic Fibrosis who usually achieve results of 80% or more.

Cystic Fibrosis is a progressive disease with the average age of death for a person with CF of around 29 years old. However, because of advances in treatment and access to clinical expertise, many people with CF are living longer than ever before.

Jenny said:

"I'm delighted to be able to show my support for the Cystic Fibrosis Trust. Having my lung function tested has shown me how much more effort people with CF have to make just to take a breath. The burden of treatment is also really arduous to try to stop lung function from declining.

"It highlighted to me just what a battle it is living with this condition, which claims two young lives a week.

"We are lucky in South Wales to have a dedicated Cystic Fibrosis unit at Llandough Hospital and some of the UK's leading experts on the condition here in Cardiff, but clearly more needs to be done to raise awareness of Cystic Fibrosis and support the over 9,000 babies, children and adults who struggle with the condition."

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